Copyright © Illustration by Hadley Hooper

Copyright © Illustration by Hadley Hooper
Copyright © Illustration by Hadley Hooper

Thursday, August 29, 2013

FDA's Narcolepsy Patient-focused Meeting - Your Input Wanted!

The FDA is conducting a narcolepsy patient-focused meeting on September 24th, both in-person and via the web.

Why is this important to me, you ask?

This meeting helps educate decision makers at the FDA, and will shape the future of narcolepsy treatments.

Narcolepsy will only get more attention and better treatments if all of us give our input and show that not only do we need better care - we are willing to do what it takes to get it, too!

Unite Narcolepsy is spearheading the initiative, and is inviting both people with narcolepsy AND their loved ones to participate in an anonymous, confidential survey to capture the variations in patient experiences. Your input can help capture this very important information!

Every little bit helps! Please take a moment to contribute your information toward this very important opportunity to get our collective voices heard.

1 comment:

  1. Thank you so much for this great post about Unite Narcolepsy's efforts and the FDA meeting on Sept 24, 2013! We are stronger together. :-)

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